My name is Clémence. I’m 25 and I was born prematurely at 7 months with a fairly rare genetic disease, hypertrophic cardiomyopathy, sometimes called hypertrophic obstructive cardiomyopathy. A mutation of the MYH7 (myosin heavy chain) gene I carry caused this disease. In my case, the wall [...]
There’s a BEFORE and an AFTER. For a number of years, I suffered from an arrhythmia. Despite an electric shock and medications, I was having more and more episodes lasting longer each time. At 68 years of age, I was unable to plan activities, an outing or even accept an invitation because of my [...]
At 70 years of age, I was in good health and never thought I’d one day be diagnosed as a person with heart failure (dilated cardiomyopathy). I had a narrow escape… It was the only organ I didn’t think would be affected. Until that point, my physical condition hadn’t caused any problems as I [...]